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Rare Disease

  • Montreal Researchers Join International Study of Rare Disease Friedreich’s Ataxia
    Montreal Researchers Join International Study of Rare Disease Friedreich’s Ataxia
    Montreal researchers are joining an international study to learn more about a little-understood genetic disease that is found in Canada, and especially in Quebec and in Acadian regions of the ...
    August 16, 2023BY The Canadian Press
  • Miracles Abound for Boy With Rare, Devastating Diagnosis
    Miracles Abound for Boy With Rare, Devastating Diagnosis
    Before Lucas Cote had ever had a full neurological exam, his mother sensed something was wrong—despite a pediatrician ...
    March 26, 2023BY Amy Denney
  • Mom Thinks Her Little Girl Just ‘Needs Glasses’–then Doctor Gives Shocking News: ‘It’s Fatal’
    Mom Thinks Her Little Girl Just ‘Needs Glasses’–then Doctor Gives Shocking News: ‘It’s Fatal’
    Melissa had always been reliant on "planning" to determine her own destiny. She planned a successful business with ...
    May 4, 2021BY Michael Wing
  • Children’s Books Reviews: Looking at the World With Different Eyes
    Children’s Books Reviews: Looking at the World With Different Eyes
    Although Rare Disease Day is relatively unknown, it’s worth taking time to think about, and it’s worth having ...
    February 25, 2020BY Linda Wiegenfeld
TOP NEWS
  • Senate Panel Advances Bill to Make Hospitals Compete on Price
    NEW By Lawrence Wilson
    Senate Panel Advances Bill to Make Hospitals Compete on Price
  • House Adopts Budget Blueprint for $95 Billion Reconciliation Package
    NEW By Jackson Richman
    House Adopts Budget Blueprint for $95 Billion Reconciliation Package
  • House Passes Congressional Stock Trading Ban
    1hr By Jackson Richman and Nathan Worcester
    House Passes Congressional Stock Trading Ban
  • US Reaches Nuclear Deal With Saudi Arabia
    1hr By Emel Akan
    US Reaches Nuclear Deal With Saudi Arabia
  • House Passes Defense Policy Bill That Attaches SAVE America Act
    1hr By Jackson Richman
    House Passes Defense Policy Bill That Attaches SAVE America Act
  • Allergy Medication Recalled Over Possible ‘Life-Threatening’ Risks
    2hr By Jack Phillips
    Allergy Medication Recalled Over Possible ‘Life-Threatening’ Risks
  • US, Ukraine Sign Agreement for Drone Testing
    2hr By Jill McLaughlin
    US, Ukraine Sign Agreement for Drone Testing
  • White House Says NJ Noncitizen Voter Error Suggests Need for SAVE America Act
    3hr By Jack Phillips
    White House Says NJ Noncitizen Voter Error Suggests Need for SAVE America Act
  • Doctor Urges Medical Community to Take Action Against China’s Forced Organ Harvesting
    4hr By Frank Fang
    Doctor Urges Medical Community to Take Action Against China’s Forced Organ Harvesting
  • Ford Recalls Nearly 390,000 Vehicles for Potential Second-Row Seat Hazard
    4hr By Mary Prenon
    Ford Recalls Nearly 390,000 Vehicles for Potential Second-Row Seat Hazard
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